CT End-of-Life Care & Support 2 — Questions and Answers
Question 1: Which principle of palliative care specifically addresses the importance of treating the patient as a whole person rather than focusing solely on the disease?
- Disease-centered care
- Holistic care (Correct answer)
- Curative care
- Symptomatic care
Correct answer: Holistic care
Holistic care in palliative settings addresses the physical, emotional, social, and spiritual dimensions of a patient's experience.
Question 2: A patient with terminal cancer asks their thanatologist, 'Why is this happening to me?' This question most likely reflects which dimension of suffering?
- Physical suffering
- Financial suffering
- Existential or spiritual suffering (Correct answer)
- Social suffering
Correct answer: Existential or spiritual suffering
Questions about the meaning and reason for suffering are hallmarks of existential or spiritual distress common near end of life.
Question 3: When a dying patient's family requests that the patient not be told their prognosis, the thanatologist's primary ethical obligation is to:
- Honor the family's wishes without question
- Immediately disclose the prognosis to the patient
- Explore the patient's own wishes regarding information disclosure (Correct answer)
- Defer entirely to the attending physician
Correct answer: Explore the patient's own wishes regarding information disclosure
Patient autonomy requires first assessing what the patient wants to know, rather than defaulting to family or physician preferences.
Question 4: The 'good death' concept in thanatology most commonly includes which of the following elements?
- Death occurring in a hospital setting
- Absence of any pain medication to maintain consciousness
- Dying with a sense of meaning, comfort, and dignity (Correct answer)
- Prolonging life as long as medically possible
Correct answer: Dying with a sense of meaning, comfort, and dignity
A 'good death' is widely understood to involve comfort, dignity, meaningful relationships, and a sense of personal control.
Question 5: Which tool is most commonly used by hospice teams to assess and communicate a dying patient's symptom burden across multiple domains?
- Beck Depression Inventory
- Edmonton Symptom Assessment System (ESAS) (Correct answer)
- Mini-Mental State Examination
- Glasgow Coma Scale
Correct answer: Edmonton Symptom Assessment System (ESAS)
The ESAS is a widely used validated tool in palliative care for rating the severity of nine common symptoms in seriously ill patients.
Question 6: In the context of end-of-life care, 'total pain' is a concept introduced by Dame Cicely Saunders that encompasses:
- Only the physical pain of terminal illness
- Physical, emotional, social, and spiritual components of suffering (Correct answer)
- Pain that does not respond to opioid medications
- The cumulative pain experienced by family caregivers
Correct answer: Physical, emotional, social, and spiritual components of suffering
Saunders' concept of total pain recognizes that suffering at end of life is multidimensional, encompassing physical, psychological, social, and spiritual distress.
Question 7: A hospice patient suddenly becomes agitated, confused, and experiences hallucinations in the final days of life. This cluster of symptoms is most consistent with:
- Opioid-induced neurotoxicity only
- Terminal delirium (terminal restlessness) (Correct answer)
- A new psychiatric diagnosis
- Medication non-compliance
Correct answer: Terminal delirium (terminal restlessness)
Terminal delirium is a common and distressing syndrome in the last hours to days of life, characterized by agitation, confusion, and altered consciousness.
Which principle of palliative care specifically addresses the importance of treating the patient as a whole person rather than focusing solely on the disease?