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CFS Patient Advocacy and Disability Flashcards

6 cards from real CFS practice questions. Tap to flip, then mark Knew It or Still Learning — missed cards come back until you master them.

Read the first 6 CFS Patient Advocacy and Disability flashcards as text

  1. What does the term 'bedbound' describe in the context of severe CFS?

    Answer: A patient who is confined to bed due to severe CFS symptoms and cannot tolerate any activity

    'Bedbound' describes patients with severe CFS who are confined to bed due to the severity of their symptoms and inability to tolerate even minimal activity.

  2. What is the significance of the 25% ME Group in CFS advocacy?

    Answer: An advocacy group representing the most severely affected ME patients who are often housebound or bedbound

    The 25% ME Group represents the most severely affected ME patients — those who are housebound or bedbound — who are often overlooked in research and advocacy.

  3. What financial burden do many CFS patients face that exacerbates their situation?

    Answer: Loss of employment income, high healthcare costs, and difficulty obtaining disability benefits

    Many CFS patients face the compounding burden of lost employment income, high ongoing healthcare costs, and the challenging process of obtaining disability benefits.

  4. What is the 'Millions Missing' campaign associated with ME/CFS advocacy?

    Answer: A global campaign highlighting that millions with ME/CFS are missing from normal life due to their illness

    The 'Millions Missing' campaign is a global advocacy campaign highlighting that millions of people with ME/CFS are effectively 'missing' from normal life — work, school, and social activities — due to their severe illness.

  5. How has the COVID-19 pandemic affected CFS recognition and research funding?

    Answer: The emergence of long COVID, with similar symptoms to CFS, has dramatically increased public and scientific attention to CFS

    Long COVID, with its CFS-like symptoms experienced by millions worldwide, has dramatically increased public awareness of and scientific and funding interest in CFS and related post-viral conditions.

  6. What does 'reasonable accommodation' mean under the Americans with Disabilities Act (ADA) for CFS patients?

    Answer: Employers must provide modifications that allow qualified disabled employees to perform their job without undue hardship

    Under the ADA, employers must provide reasonable accommodations — modifications or adjustments — that allow qualified employees with disabilities including CFS to perform their essential job functions.